Mother angry over travel scandal after Make-A-Wish trip postponed for sick son
EDMONTON — An Alberta mother says she’s outraged by various politicians and staff who decided to travel abroad over the holidays, while a dream trip to Hawaii for her terminally ill son had to be postponed.
Lia Lousier of Airdrie, a bedroom community just north of Calgary, says nine-year-old Braeden is one of 100 people in the world to be diagnosed with a rare inherited connective tissue disease called Hajdu-Cheney syndrome.
“He has something going on with every major organ in his body,” the mother of three boys explained Monday, while seated next to Braeden at Alberta Children’s Hospital in Edmonton as the boy received a blood transfusion.
“He’s been through heart surgeries. He’s been through abdominal surgeries, many other minor surgeries. And on top of that, he’s gone through meningitis. He’s gone through sepsis. He’s gone through strokes, seizures. You name it. This kid has fought it.”